Adventures In AMN

AMN stands for Adrenomyeloneuropathy; it is the adult form of Adrenoleukodystrophy (ALD). Symptoms include gradual weakness and stiffness of the legs, difficulty/change in walking pattern, loss of the ability to coordinate muscle movement (ataxia), excessive muscle tone (spasm), neuropathy, fatigue, nausea, and bladder and bowel dysfunction. My feet are numb, I can't walk straight, and I can have a lot of stiffness and pain. It's rare for women to have adrenal gland problems.

Monday, September 1, 2014

ANDY GOT APPROVED FOR A MAKE-A-WISH!!!!!

He wants to go to Legoland in California, the beach, and Sea World. So far, so great!

Okay, found some more information about ALD on the web:

http://www.ninds.nih.gov/disorders/adrenoleukodystrophy/adrenoleukodystrophy.htm

Adventures In AMN

Monday, September 1, 2014

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